Glimpses of Co-Consciousness

A chalk pastel picture one of the littles did

Until recently, whenever one of my parts came out, or was in control, I would go into my 'room' within the house in our head. During that time I would not be conscious, of either what was happening inside or in the real world. However this is slowly beginning to change, I am starting to be aware of what is happening outside (in the real world) while I am switched. It has only happened a few times and I was only able to perceive  bits of what happened during that time. I still do have bad times when I hide away completely and littles take over, like last night - I lost about 5 hours to the 6 & 7 year olds.  However that is happening less and these glimpses of co-consciousness give me a lot of hope.

When I compare this to when I first found out about my parts it amazes me how far I have come. Back then, I was unable to communicate with them, there were no rules in place and they were able to do pretty much whatever they wanted. I had no idea what happened during those times and would usually be gone for hours, sometimes even days at a time.

Healing is such a difficult and scary process, and its hard to see how any of it helps. I honestly am still not sure how it does help but obviously something is helping if we are making this progress. What I really want to say to anyone out there who is working at healing: keep at it, it is definitely worth it. That isn't saying I feel that this means I am healed, or even close, I am still working through some very difficult memories and there still is stuff I haven't remembered yet. I also don't feel that just because I have come as far as I have that I am suddenly an authority on healing. I just hope that my experiences help other people feel less alone.

Terrified of hospitals

I'm over hospitals, first Elmo fractured his L1, then a couple weeks ago I became really sick and couldn't keep any food down and became so dehydrated I needed to go into the hospital for a day. They did lots of tests and never did find out what was wrong however they believe it was just an infection. Then a few days ago Elmo went back into hospital for what they thought was appendicitis but turned out to be a swollen colon. He was released yesterday and is much better but over all I am just sick of hospitals.

I have to go back to the hospital tomorrow morning for yet another test as my doctor keeps wanting to check that the Chronic Fatigue isn't anything else. I will only be in there an hour or two, however its still the hospital and the truth is hospitals terrify me. I have managed with all these trips because Elmo needed me or because I knew I needed to be there and I'm not going to let myself be horribly sick to avoid hospitals. At the same time though they terrify me and it gets me all uptight every time I have to go. 

I am rather impressed though that I have managed to visit the hospital this year and I didn't switch, well for very little time anyway. A year or two ago I would not have been able to cope and would have hid away inside and let another part deal with being at the hospital. I even managed to avoid panic attacks. For me this is a huge improvement, that I have been able to face my fears and keep myself calm.

I believe I know where my fear from hospitals comes from, but it frustrates me at how irrational it is. When my grandmother went into hospital (she was sick for all of my childhood) it usually meant I was left alone with my grandfather and bad things would happen. I believe I associate the hospital with those bad things despite the fact I realise that it was my grandfather and not the hospital at fault, and it just provided my grandfather with opportunity.

I am not really sure about the point of this post, other than to let out my frustration and anxiety about hospitals out. I do want to write in my blog more and plan to try, however as you may have figured out by this post I am still struggling with the Chronic Fatigue and been quite sick on top of that and that makes it hard to keep on top of blogging.

Measuring Progress

When discussing healing I have often heard the saying 'one step forward, three steps back'. It is something I have said myself, there are times when things are so confusing that you feel you have been spun in so many directions that you don't know which way you face. There are plenty of times when the set backs are so easy to see, but it is rare to see the progress until you look back and realise how far you have come.

How do we measure progress? what is considered a step forward? what is considered a step back? There are definitely times when it is obvious, such as being able to handle a situation that I couldn't before. However, this week I have realised there are plenty of things that can be considered either - it is just a matter of the way you look at it.

About a week ago, I found out about a new part, Laila. I still don't know much about her - she seems to be an adult. However the way she speaks reminds me a little of Elsie or Sasha so I wonder if she is another non-human alt. I do know she is nocturnal, this is something she has told Stacy - and so far she has only come out at night.

When I first found out about Laila, I was disappointed. I felt that I had been making progress lately and felt that a new part was obviously a set back. I definitely thought along the lines of 'one step forward, three steps back'. Later, days later, I started to really think about it differently. In the past many of my parts have been around a long time before they have become known to the system and I believe this is the same with Laila. A new part doesn't mean I have 'split' again, it is just a part as surfaced that I didn't know about before. This could be because she has a skill we need, because she carries memories we are ready to face or simply I am in a place where I can accept something new.

Laila appearing now can be taken as a sign of our progress - of my own acceptance of our system. It is all a matter of perspective - the way I choose to look at it. I still don't know why Laila is a part, or why she has come forward now however I am choosing not to see it as a set back.


My last session with Margaret (my psychologist) was a hard one, it left me shaken and I really struggled with the things we discussed. Ever since I have seen Margaret we spent very little time discussing the past, my childhood or any of the abuse. Not that Margaret hasn't tried to get me to talk about it, but I am a master at avoidance and changing the subject and Margaret will only push me so hard - I need to be ready. My last session was different, we discussed my last visit to my grandparent's house (after Nana had died, but Papa was still alive). I talked about how it felt, the fear and the need to get out. We discussed other things but I will go into that another post. I have mentioned in other posts that I can actually talk about the abuse to some degree however it is like telling a story - I am detached from the memories and don't feel any emotions about it. This was different - I talked about my memories, my feelings - I didn't just tell a story.

Being a hard session could be taken as a bad thing, a set back but the truth is I managed to start to face the emotions, to talk just a little about the past. That is a huge step and Margaret made sure I knew that before we ended our session. The 7yo didnt flip out at me talking either - which is a big thing for her (she is the keeper of secrets).

This weekend has been a wonderful weekend, I was simply happy. There was nothing particularly special about this weekend, I did have lunch with a great friend who I haven't seen in ages, I went to church, I cuddled my friend's new born. These are all simple things but they brought me so much happiness. I came home from church on Sunday night and I was happy. I am happy. content and just simply in a good mood.

I could look at my great mood and say that it is of little consequence, I just had a good weekend. However when I think back to 2008, I was so depressed, I didn't think I would ever be happy again. Even just reading my blog at the end of last year, I felt that I wasn't living life. The fact that I am happy is such a great thing and is evidence of the progress I have made. It is also a reminder of the great things and people I have in my life.

I don't believe I have suddenly turned a new page and I am going to be always happy and making huge bounds forward in healing. Life doesn't work like that. There will set-backs. There will be bad days. However I can see I have made progress and that I am making progress. More importantly, when difficult things cross my path I can choose the way I look at them. I hope this reminds me to look at things more positively, to recognise even the baby steps forward.

Forgiveness

I have been thinking a lot about forgiveness - why I need to forgive and how to accomplish it. For a long time the reason I felt I needed to forgive was because God told me to, as a Christian that should be enough, however this didn't help me know how to achieve it. It wasn't until recently that I realised that I couldn't answer those questions until I figured what it meant to forgive.

My mind and some of my little ones have been raging at me, why should we forgive HIM? He hurt us and he took pleasure in it and you want us to forgive him? The pain and anger with those questions is so overwhelming that it has left me shaking in the past. Anger is something I don't deal with very well, honestly it's not something I deal with at all, some of my parts hold a lot of the anger -but for the longest time I haven't been able to get angry, I simply hid within myself and let another part deal with confrontation. I am getting better at this, I now get frustrated and even a little angry at times. I stand up for myself more and I am more likely to voice my opinions. This blog has helped me with that last part. However anger still frightens me, even anger that comes from within (maybe even more so) and the anger I feel with those questions terrifies me.

This is where my epiphany stemmed from, it was from this that I realised why I should forgive: because I don't deserve carrying around all that negative energy, the anger, hatred and pain. Several dictionaries describes forgiveness as "to pardon an offence or an offender", to absolve*. I am starting to see forgiveness as more than this - to me, it is letting go of the hurt, anger, hatred. It is accepting what happened and choosing to live on without the negative energy.

I created this in Polyvore after I wrote this post and decided to add it...

The key word here is acceptance. When I say acceptance I do not mean pretending that what happened was okay - if what happened was okay then there would be nothing to forgive. By acceptance I mean acknowledging what happened, understanding it was beyond our control and choosing to let go.

understanding... accepting... letting go... forgiving...

Not that I am saying this is easy, it is anything but easy. And this sudden epiphany doesn't mean I have suddenly forgiven and let go of the pain and anger. I beginning to understand that forgiveness might not be something you just decide and move on. It's a process and sometimes a process that needs to be repeated several times.


I am starting to recognised that this is even more emphatically so when relating to myself. The few times I have felt anger it has usually been directed at myself, there have been times when I truly hated myself and believed that I deserved all that happened and more. Yet I hadn't thought really of forgiving myself because I do not see what there is to forgive - what happened was not my fault. And yet there are times when I still need to understand this, accept it and let go of the hate. I need to forgive myself.

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*  forgive. (n.d.). Dictionary.com Unabridged. Retrieved January 29, 2011, from Dictionary.com website: http://dictionary.reference.com/browse/forgive

Expressive Arts Carnival: A Self Portrait

When I first read the activity for the Expressive arts Carnival I planned to submit Natalie's portrait that she did last year. However on the way home I started to consider the project and the way I view myself and I realised that this was something I really wanted to explore. As I spent more time contemplating the way I see myself I realised there was so much I wanted to represent.

I wanted to show how much hurt I still feel inside from my past; I wanted to show how fractured I feel living with DID but I also wanted to acknowledge how much I have achieved in healing and how much my self esteem has improved in the last few years. I was overwhelmed with how I could achieve all this in one portrait.

The inspiration for my self portrait finally came when I was reading one of Nadia's poems:

Reflections

Staring in the mirror
We are angered by what we see
The reflection of a girl
A single face, standing in solitude
The mirror tells a lie

For a second the anger spills over
Unable to be contained,
The fist flies at the image.
The crash breaking the silence
Like a thunderclap on a calm night

Now the mirror lies in pieces
Shattered into a thousand fragments
Each containing a face of girl
Now we see our reflection
The mirror shows the truth

As well as showing how broken I sometimes feel with so many parts, I thought that the broken mirror was an apt metaphor for how the abuse has distorted my view of myself. I drew a number of drawings however none of them really captured what I was trying to portray. This is when one of my little ones suggested I try Polyvore, which they had discovered through castorgirl's artwork.  

Reflections: a self portrait

I am really proud of how this turned out, though it is nothing like how I originally imagined it. Despite this, I think it does capture all that I wanted it to. There are so many symbols in here of how I see myself I don't think I could really explain it all - I am not sure I understand it all on a conscious level anyway.

Having spent this time really looking at myself and the way I think about myself, I realise that I still struggle to not see myself as broken, as damaged goods. However, I am proud that a part of me is trying to fight that view and that while I still see the bad, I see good along side of that. I recognise that I am a strong, loving person, that I am creative and a good friend.

When the Tears Don't Fall

Please be warned this may be triggering to some survivors

please take care of yourself

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A few days ago I read castorgirl's post "Expressive Arts Carnival: Self Portrait". I was really blown away by her artwork, which triggered some very strong emotions for me.  I found the images very confronting and could relate to them on many levels. In the comments section I explained what I saw however it was castorgirl's reply which really articulated what I saw:

 I can see why you would see the perfect face people want us to present to the world, and the hidden damage we feel. That was another motivation for taking the picture – to show the dissociative coping, show how others see us, or how they want us to be. 

When I was reading the post and viewing the artwork there was a lot of internal conflict, for many of my parts and for me as well this images and some of what castorgirl said really reflected how we felt about the abuse of my childhood. The sense of feeling dirty, used, broken. It really made me want to cry, not just for the hurt we had, and continue to feel - but for the huge number of people out there who feel the same pain.

I still struggle with the ability to cry, to let the tears fall. Its not that I don't want to cry, because these days I do - I want to let it out and feel the release that comes from a good cry. In the last few years I have started to be able to cry - but I can still count the number on 1 hand. I believe the reason I struggle so much is because I was punished for crying and so I learnt not to, and now I don't know how to undo that learning.

Generally when I feel I want to cry, but can't, I draw the tears. Its not the same thing but it does help me to reflect on the emotions and to find a sense of calm. I have drawn hundreds of these pictures over the years and generally they have a similar look to them. This time, when I drew in relation to cartorgirl's post something different came out.

In this picture I didn't just see the tears I wanted to cry, I saw the deep hurt, shame and fear that I have been unable to face for years.

Over the last few days as I have been reflecting on my reaction to castorgirl's art and my own drawing I have found a deep sense of accepting that all this hurt is not my fault and that I did not do anything wrong. It was not my actions that cause my grandfather to hurt me the way he did. While I have intellectually acknowledged this for a while now, this is the first time that I have had a deep sense of accepting it.

Parts of me?

When I was talking to Steve about DID he asked me where I felt my little ones came from. I had a lot of trouble answering this and I thinnk Steve recognised that as he then changed the question to where did my psychologist think my parts come from. I told him that Margaret said that they are each a part of me - that my mind created different parts to deal with different things in a difficult situation.

Intellectually I have accepted this but when ever Margaret (my psychologist) or someone else talk about them as part of me I want to argue with them. Its a purely emotional response, I recognise that and generally I stop myself from arguing and just bite my tongue, so to speak. Steve seemed to be of the opinion that they are spirits helping me. But that doesnt feel right either.

I have always felt a sense of togetherness with my little ones, a sense of kinship, similar to the ties to family - a connection to them. I remember Paul describing a circle that encompasses all of us - I could relate to that. I have been considering this for a while and I actually found something written down in our shared journal, I am not sure who inside decided to give their opinion but I liked it and thought I would share:

When we were hurt our soul shattered, breaking into different pieces. As it healed it became a multiple of wholes; all connected but seperate, shared in a body.

I dont know how true that is, but it does show that feeling of togetherness while explaining the sense of seperatness.

I suppose Margaret would say that it is not really productive thinking like this. Margaret has been very good at helping me - she has taught me so many skills in coping, she was the one who diagnosed us, and she has help to empower me in particular in really trying to actively heal. She encouraged me to get back into my art after I took that long break. However Margaret seems to feel the only path to healing leads to intergration.

For those of you who dont know what intergration is, the idea is that all of the parts of a person with DID "intergrate" or join together to become one person again. I have heard of people who have interegrated and it has fallen apart months or even years later. I have heard of people who are currently living "intergrated". I also know of people who have full co-conciousness; in other words that are full aware all the time however who is in control can still vary. Or at least that is how I understand it.

Currently my goal in healing is to reach co-conciousness, to be able to function in the every day world. Intergration just doesnt feel achieveable to me at this point and some of my little ones panic at the idea of integration. I guess I panic a little at losing something that has protected me for so long.

When I first found out I had DID - before I could even hear my littles ones, I thought that it was a disaster, something to be ashamed of, that I was somehow broken. I believed that intergration was the only solution. Then as I started to get to know my little ones, I started to realise it wasnt the end of the world, I started to read as much as I could on DID and began to realise that there were other options. At that point I would have said I would never intergrate - that it was an impossibilitity - too hard and too far out of reach. Now? Now I think its a possibility, I feel more together than I ever have however I still feel a strong sense of seperateness at the same time. The idea of integration creates less anxiety than it used to though there is still some. It is something I will consider in the future - for now co-conciousness seems a good goal.

Does Dissociation Make Us Special?

Paul's blog, Mind Parts, is a very well written blog that really gets me thinking about my own healing journey. I am slowly going back over his past highlighted posts. Yesterday I read his post "Does Dissociation Make Us Special?" and it provoked in me a lot of emotion as well as thought.

I'm not sure I completely understand why I had such a strong emotional response to this post. I felt hurt, betrayed and even anger. Intellectually I understood what Paul was trying to say and I even agree with a lot of it, which is why my emotional response surprised me.

I can understand the risk of viewing ourselves as special because of DID, how it might hinder healing. If I believe I am special because of DID then I am unlikely to move past it, wanting to hold on to that feeling of "specialness". That doesn't mean people diagnosed with DID aren't special, they are - each of those people are strong individuals who survived something horrible - but what makes them special isn't DID, or what they survived - it's that they are strong unique individuals.

I have come to know many other survivors through Pandys, blogs and other forums, and I believe all of those friends, are beautiful, strong and loving people who I have great admiration for, I think they are special people. However, personally, I haven't really ever felt special, while I can relate to these people and recognise that I fall into the same category as a survivor, I cannot see myself in the same way.  I realise that is part of my low self esteem, the part of me that still believes all of those cruel things I heard as a child. But understanding something intellectually and accepting it within yourself are two different things and while I do a lot better at not putting myself down I have yet to accept that I might be special, for whatever reason.

The topic of language in his post was an interesting one, that I still have two minds about. For a long time I struggled with terms such as "alt" or even "survivor". I still do. I have always called my "alts" 'my little ones' or if talking about them individually I refer to them by their preferred name. As I began to involve myself in the "survivor" community (blogs and forums mostly) I began to use the language myself, not because I felt differently about it but because it made it easier to communicate. It made it easier to explain to close friends.

Paul said:

The language of dissociative disorders and their definitions present narrow views. These views tend to tie us into a particular way of thinking (and sometimes being) and ultimately hold us back...

It's rather easy to say "Personality A did this" or "Personality B was out" and people, particularly treaters, will know exactly what you mean. But that's usually said because of lack of awareness, or strict adherence to the dissociative language and paradigms. As we develop awareness–as we heal–we necessarily find ourselves at odds with these paradigms and with the goal of dissociation.

I disagree with this, I do see the point he is trying to make however for me the language and definitions provide a common ground and understanding when talking to others about DID. It gives me a place to build from to then take those terms and use them to help people try and see my own personal experiences. That having been said, while I may use these terms while communicating about DID it doesn't define the way I think, feel and experience it.

I don't think using it to communicate has ever held me back or I have used it to distinguish myself, or to seem "special". Some words still rub against me the wrong way, but it is easier just to use them rather than try and explain the complex ways I feel and view my system. 

As far as referring to each alt by their names, (or as Paul puts it "Personality A " or "Personality B") this is something I do instinctively. I am aware that when I call them an alt or part some of my little ones feel insulted, they feel I am making them less than what they are.

A final comment on Paul's blog, just because I have disagreed with parts of his post and I had a huge emotional response to it, has not changed my opinion of it. It is a well written blog which I find challenging. I have a great amount of respect for Paul, what he writes and what he tries to do with things like The Expressive Arts Carnival. I admire his strength and his ability to write topics that could be consider controversial in a respectful manner.

Dissociation, Fears & Facing Stigma

 I started to reply to Candycan's post and what was just going to be a small comment ended up being another huge post in itself, alot of the issues I talked about I want share here anyway so here is my full reply:

Yes, I experience a number of different dissociation types - from what I have read, and what I have discussed with the psychologist I see this is normal - that the different dissociative disorders do overlap to some degree (as in you may have DID but experience Depersonalisation).

I occasionally feel that unconnected to my body, particularly during really hard times. I also "dissociate" from my emotions - so I am completely aware and functioning, & while I might have an emotional response to what is happening I wont feel those emotions at the time. This is something I particularly have to work on in my healing. Because I will often remember the memories of my past but not the emotions attached to those emotions - and I cant work through those emotions until I can connect with them - if that make sense?

I think the most frightening for me was when I first was really experiencing the DID full on before I knew what was going on. Way back when it all started I couldn't hear my alts, I wasn't really aware of their existence. So when I first became aware of me losing time I had no idea what was going on. I would be doing one thing and then all of a sudden I would be in a completely different location, different clothes, having no idea how the minutes/hours and occasionally even days had passed in what seemed to me a split second.

Id have people ask me a bout conversations I never remembered having, and on a few occasions ran into people at the shops/school that I didn't know but who obviously knew me. I would find artwork in my sketch pads that I never drew. That was terrifying and there was a constant fear of what I would do in these mysterious losses of time. And there was the fear of telling anyone in case they locked me away in a straight jacket.

I think that is one of the hardest things we have to get past - the stigma of mental health issues. My fear of switching is all but gone, I am more in touch with my alts and can always ask them what is going on or what has happened. The not knowing is what was the scariest part for me. My biggest fear these days is people finding out, switching in public & behaving in a way that people will realise is not "normal". I still get nervous about switching in front of friends who don't know.

And this fear comes from the fear of losing friends, fear of people's judgment. And this fear stems from the stigma that surrounds things like DID - that is what makes me think people will react negatively, and usually the reason why those few closed minded people do react so negatively.

Wow this comment has become almost as long as another post!! I hope this answers some of your questions, I hope it helps you feel less alone.

I want to add this - that stigma is slowly changing, but its something we need to face head on ourselves. But to do that we need to be confident in ourselves that DID (and whatever any other mental health issue you may face) is NOT a bad thing, its NOT your fault, and it DOESN'T make you any less "normal" - because what is normal? & when you take into consideration what lead us to be like this - who is to say this is not a normal response to such extreme actions, in which we had no control??

I do struggle to remember these things, to be confident in myself and not to be ruled by my fears, including fear of rejection. But it is something I am trying to change in myself.

This brings me back to Jackson's journal post on SuperForest (check my earlier post here). This post touched me deeply, it really reminded me how much I let fear control my life, and how much I want to change that.

Fear has seemed to come up a lot today - I think someone really wanted to remind me of goals.

Misdiagnosis - Skitzophrenia vs DID

Thursday is the day I visit my psychologist. I cannot say enough how lucky I am to have found someone who can help me and my alters. There are alot of therapists and psychologists who dont know how to deal with DID. Some just dont believe it exists. There alot of misdiagnosis - usually saying DID is skitzophrenia.

Let me try and explain the differences between skitzophrenia and dissociative Identity disorder:

DID is a way with coping with trauma, usually sexual abuse. A young mind breaks off apart of themselves to deal with the memories, the on going trauma, the emotions etc. This is basicly how alters created, they deal with what our minds couldnt cope with at the time. However each alter is a part of the host.

skitzophrenia is a mental illness, its a chemical imbalance in the brain. Skitzophrenia actually destories brain tissue. There are a number of symtoms one of the most common is hearing voices. This is where the misdiagnosis comes in. However the voices a person with Skitzophrenia hear are not parts of themselves. ANd usually they believe these voices are coming from outside influences.

I saw alot of psychologists and councellors before Margaret (my current psychologist) but while I went to them to help me with what I had been through I did not tell them about the DID. It took me over a year with Margaret to trust her enough to tell her about my alts.

I was terrified that if a doctor or councellor found out they would have me locked up in a hospital - have me committed. I have a large fear of hospitals - not quite phobia I have managed to enter them without having full blown panic attacks at the door - but they are a place I try to avoid - at all costs.

Luckly Margaret reckonised it for what it was, and has been able to help me with it alot - despite how good I am at avoiding. I have a habit of steering the conversation away from anything to painful. Funnily enough I cant actually say what happened to me without trouble if I trust a person. But when I do I tell it like its a story I dont connect with it within myself. I just say the words. I never let myslef feel the pain.

Part of therapy is to visit that pain in small doses to learn how to handle it. I am just starting to get to this stage in my therapy - first I had to establish trust and make sure I was in a stable place. Which I am for the most part - uni assessments dont help. Another part of therapy was learning how to deal with results of trauma - the symtoms of PTSD. the panic attacks, the fear, the nightmares.

I can handle panic attacks now - it took a long time but now I can focus concentrate on my breathing and calm myself just enough before I am hit with a panic attack. I still panic and it is still hard when I am triggered but I dont go into a full blown panic attack.

Nightmares are harder, but in some ways I am doing better with this than 2 years ago. For a long time a good nights sleep was 4 hours max, nightmares where a constant thing every night. Now I can get a full nights sleep, and sometimes go 3 or 4 nights without a nightmare. However it comes and goes in waves. there are times when I will only get a 1 or 2 nightmares a week and they are fairly easy to manage. Then there are times when the nightmares come back every night worse than ever, alters and myself are triggered really badly and our body remembers. But with time and work with Margaret I hope the bad nights are further and further apart.

Fear - it is still very much apart of my life, not just fear of being hurt again, but fear of rejection from people. Fear of large groups of people or loud noises. Fear of how people will react if I switch and an alter comes out. Fear of never being loved.

This is probably the biggest thing I am focusing on at the moment - trying to get past my fears.